I wish you well in your quest to be healthy and if I can assist you, please do let me know. Meditation: Helps to calm and balance the nervous system, even 5-10 minutes of meditation can be very beneficial for hot flashes. 1. My side effects were very troubling. Thanks for sharing your side effects, so sorry you went through all of that. He has left the decision to me. To reduce your symptoms, incorporate things like massage, yoga, meditation, breathing exercises, even hypnosis into your daily life. Please send me any information that might benefit me from here going forward. Wow – what a story! Warmest regards, Will that return? What we are finding out here in the trenches is that this drug works for some but definitely not all. Pins & Needles in Extremities – Again, I recommend the use of massage therapy and/or acupuncture, drinking plenty of water, and it would also be helpful to do a bowel cleanse and a liver cleanse because Tamoxifen is a toxic drug, and cleansing will help you clear chemical residues which may be building up in the tissues of your body. I have had a bone scan, bone density test and BRACA test all came back perfect. Hi LC, Marnie. I usually have high energy level but since I went off meds, I feel as though I have a slight case of the flu, and tire more easily. Brain Fog – Essential oils are extremely helpful here because they help to clear off the neuron receptor sites of any accumulated gunk (which can result in brain fog). I dwell on sad news, can’t seem to help it. You are one of the lucky few who had no problem with it. I hope this helps you today, and I wish you the best. Warmest regards, Can u advice me on what I should use to avoid recurrence. Personnaly, I feel it was of benefit to me. Food: Eating lots of fresh produce definitely helps with joint pains and body aches. Part of my problem with Tamoxifen is the wide range of side effects which include headaches, dizziness, nausea, hot flashes, night sweats, vaginal dryness, leg cramps, hair thinning, brain fog, pins and needles in hands and feet, joint pain, moodiness, depression and anxiety. I found that flaxseed oil helps with hot flashes and chamomile tea soothe my nerves. Well, it’s great to finally get a good report from someone who’s been on Tamoxifen for so long. My favorites are wintergreen, peppermint, ginger, and a blend called Deep Relief. Clary sage, peppermint, spearmint, lavender and thyme all have a positive effect on hot flashes. Please forward that info soo greatly appreciated. "I noticed many of these men were stopping tamoxifen therapy early, and the side effects seemed to be different from those generally reported in women." Hope this helps, I am based in the Uk. Warmest regards, I found yoga to be extremely beneficial because it helps on so many levels to calm the nervous system, it plays a part in hormonal balancing, yoga is an amazing resource. Thank you, Hi Chelsey, Sleep: If you are feeling especially fatigued, don’t try to fight through it. My favorites are wintergreen, peppermint, ginger, and a blend called Deep Relief. Thanks for your message and for caring so much about your sister’s health. The problem is … Tamoxifen is a drug meant to reduce levels of estrogen. Trying to get off Tamoxifen after 4 1/2 years. Thanks for sharing it with me and my readers. EVERYTHING HURTS!!!!! Some women are now being told to take tamoxifen for ten years, that is true. Warmest regards, Indeed, these are just some of the side effects from Tamoxifen. I am also having unbareable vaginal dryness just about as bad as when I began tamoxifen. There are many reasons for these side effects but the major one is that while tamoxifen initially acts as an estrogen-blocker, over time it begins to have estrogen-like activities. This booklet does not I’m sure it’s still in there somewhere! If I can help you with any of that, do let me know. Tamoxifen can cause mild or serious side effects. They come and go, but today has been the worst. (I know you are not a fortune teller, just wondering what the literature says). In many cases, the benefit of treating or preventing breast cancer with tamoxifen outweighs the risk of these side effects. Marnie. Bridget, Hi Bridget, Feeling lost … I have plenty of information about all of the things I have recommended and would be happy to share it with you. Tamoxifen + Cardio Exercise = Longer & Better Life Tamoxifen and cardio exercise are a very good pairing. I honestly didn’t feel much side affects on it except my sex drive disappeared. Marnie. Just feeling a little confused and lacking confidence on my own decision making!! Thanks! Marnie, Your email address will not be published. The side effects of hormone therapy depend largely on the specific drug or the type of treatment . She will recheck me again in 3 months to do a comparison. Rub into affected area. Food: The same list of foods as those mentioned for Depressed Mood or Mood Swings can help with fatigue as well. There are many things you can do to help keep yourself well without the toxicity of this drug. And one other thing I use a lot is coconut. This site uses Akismet to reduce spam. Marnie. Tamoxifen is used to treat breast cancer that has spread to other parts of the body (metastatic breast cancer), to treat breast cancer in certain patients after surgery and radiation therapy, and to reduce the chances of breast cancer in high-risk patients. I promise to do my utmost to keep you informed and empowered on your healing journey… and beyond. Thanks for sharing. I used to be fun and energetic and tamoxifen has literally ruined my life. Supplements: Glucosamine sulphate, omega-3 fats, MSM, ginger, turmeric Turmeric pills. That made me so mad. The following list contains some of the key side effects that may occur while taking acetaminophen/tramadol. I’ve been on tamoxifen for several months. Continued What are the side effects of tamoxifen? Depending on those results and my GYN recommendation she suggest going back on Tamoxifen if Gyn agrees my “walls” are okay, if not she wants to force me into menopause with monthly shots & daily pills again until….. You poor dear. I am told, it is my age..not an answer I am willing to accept, I had none of these issues prior to starting Tamoxifen. Although tamoxifen may have positive side effects on bone and lipidsthat would result in additional lives saved, the primary benefit of tamoxifentherapy (next to the cytostatic effect on the breast tumor itself) is stillthe reduction in the incidence of contralateral breast cancer. Marnie, I have a lot of weight gain and bad hot flushes and I can’t sleep, Hi Margaret, Survived. Tamoxifen is a common medication used to prevent recurrence of breast cancer. 2. Hi Marnie great article. It has been 4 months and I am finally starting to feel like my old self. by Marnie | Jun 17, 2015 | Tamoxifen | 103 comments, Natural Remedies For Tamoxifen Withdrawal Side Effects. I’m 41. Learn about side effects, interactions and indications. While I understand that the drug has been “out of my body” long ago, it is the continued side effects my doctor cannot give me good information about. Thanks! My onc is not happy. Follow your doctor's instructions. Warmest regards, Until recently, most women who received adjuvant hormone therapy to reduce the chance of a breast cancer recurrence took tamoxifen every day for 5 years. Kind regards, Hi Tina, Warmest wishes, https://marnieclark.com. I’m sending info to you today. I just sent an email to my oncologist to talk about this. As a breast cancer coach, one of the most asked questions is how to cope with Tamoxifen side effects, so today I’m offering assistance! Warmest regards, She has a very good article discussing which bone assessment techniques she feels are most advantageous: Bone Density Tests Are Not Enough. Warmest regards, I am not convinced that Tamoxifen is such a wonder drug, and I discuss why in my article Why I Chose Against Hormone Blocking Drugs. You can also “like” me on Facebook (Marnie Clark, Breast Health Coach) to get my inspirational snippets, news and updates. However I found something alarming! I have been taking it for four and a half years so I don’t reckon it would make much difference to cancer recurrence if I withdraw now. Sorry for the delay. I had breast cancer, now lung cancer!!!!! Stick by it. Marnie Clark. Warmest regards, I can’t believe they offered it to you again! However, I wanted to know about withdrawal. It’s reassuring to know I’m not the only one feeling like this. to treat [secondary breast cancer] to reduce risk of breast cancer developing in women at high risk because of their family history. To do this: 1. I am so frustrated that this has still not gone away. My anxiety grew until I found myself nearly suicidal. I have just had my annual review of medication with the Onc. I am starting to see a new oncologist next week. I had a few cancer cells in one lymph node. I have recently stopped Tamoxifen after 4 years, mostly because, after years of severe nausea, insomnia, brain fog, pain, fatigue, loss of appetite, weight gain and a host of other side effects, I was told I would be taking it for 6 more years. I really don’t want to take tamoxifen but feel very worried by my decision. Marnie, Hi marine lve been taking tamoxifen for 5yrs and6 month they told me l had to take for 10 yrs but lm tired of this toxic in my body now I’ve stopped it and l have lot of side effect very low tired l guess it will get better l had grade one of cancer was lucky l had part of breast remove my nipple and had radio now I have to go to gynae as I had a bit of discharge l hope is nothing thanks for listening my story xx. Thanks so much for your kind words. Not at all surprised to hear about your side effects, just sorry you had to go through them! Thank you for a brilliant article with some great advice. However, now my side affects are worse. IYesterday was my first day without Tamo. Be looking for my email responding to your specific questions. I don’t think I should have these problems at 52. Eating drinking in a healthy way, taking cardius marianus capsuls, reisha mushroom To this day, I still experience muscle cramping in my feet and hands, joint pain and the weight gain I have always watched my calories and worked out daily, nothing I do budges the scale. I hope the remedies mentioned on this page have been proving helpful to you. According to new research, tamoxifen, the familiar therapeutic and preventive breast cancer drug, can be applied topically as a gel. There is no need to taper off the use of Tamoxifen, you can just stop taking it. I’m trying to catch up with all of the emails and messages I receive! I would like the natural remedies for fighting breast cancer in place of Tamoxifen please. We haven't listed all the side effects. Hot Epsom Salt Baths: Use 1 cup of Epsom salts in bathtub, soak for 20 minutes (careful, not too hot as this will exacerbate hot flashes). Thanks for your comment! I’m ready to be free from the side effects and to have a better quality of life moving forward. My oncologist originally prescribed this for me for 5 years. Should you decide to stop taking it, this article might prove helpful: https://marnieclark.com/natural-remedies-for-tamoxifen-withdrawal-side-effects/ The estrogen deprivation caused by tamoxifen results in some side effects (such as hot flashes ) that are similar to symptoms experienced during menopause. Found lumps in my neck, praying it’s nothing. I have been off all meds of my own choice for a month and am so so confused as to what is the best option. Warmest regards, I used to walk 4-5 miles a day; now I’m lucky to walk. I would also appreciate the info! They are now recommending Tamoxifen use for up to 10 years. They officially took me off it yesterday. Dear Tasneem, Dear Karen, A new meta-analysis of previous studies has reported that the cumulative toxicity of aromatase inhibitors when used as treatment for five years may explain the lack of overall survival benefit compared to tamoxifen despite the fact that aromatase inhibitors result in better breast cancer-free survival than tamoxifen. Estrogen is necessary for good bone health, our bones rely upon it. I suffered so much joint pains and fatigue during and after tamoxifen. Thanks for contacting me. Marnie, Thanks for your info. GET MY BEST TIPS on getting through breast cancer and preventing recurrences by signing up for my free e-newsletters and e-books on the right. I don’t want to wait 6 years for my quality of life to improve for minimal beneficial impact from this horrible medication. So make sure to drink plenty of water (and not tap water!). I am looking at seed cycling. I strongly recommend everything I’ve suggested in this article, and for extra detox tips, see this article: https://marnieclark.com/how-to-detox-your-body-after-chemotherapy-and-radiation/ Hope you feel better soon. 2) What are these alternatives to Tamoxifan that you make reference to? You may need to go off the Tamoxifen or reduce your dosage. Let me know. Hello ladies I have your email address and will email you some information. But went on to take tamoxifen cos the docs insisted i needed the ‘extra’ insurance against recurrence. It’s as though there is a pressure, and I want to clear my ears…it’s quite intense and disabling when it comes on. I came off of Anasrozole after 5 year use. My current solution is Klonopin for sleep and estrogen patches and progesterone orally. Looking forward to a healthy post cancer approach. Marnie. Thanks for your comment. Thank you so much for sharing this and replying to me personally. Judy, I’m sending out an email to you shortly. Tamoxifen is used to treat breast cancer that has spread to other parts of the body (metastatic breast cancer), to treat breast cancer in certain patients after surgery and radiation therapy, and to reduce the chances of breast cancer in high-risk patients.. Tamoxifen can block the growth of breast cancer. The effect of acupuncture on postmenopausal symptoms and reproductive hormones: a sham controlled clinical trial – http://aim.bmj.com/content/29/1/27.abstract, 3. Patients should keep appointments for blood work to monitor for these side effects. The most common reason is as a treatment for male breast cancer. Warmest regards, Each type works a bit differently. For many women, tamoxifen side effects are too much to stomach, and the prospect of enduring them for five years is not appealing even at the risk of cancer recurrence. I have had many say something similar after being on Tamoxifen. Enjoyed reading your helpful information. Enter your details below to receive my informative newsletter and I'll also send you a copy of my 2 eBooks as my gift to you! Had been on hrt 20 years. I have my life back. Learn how your comment data is processed. California has a law called Proposition 65 that requires the state to publish and maintain a list of known carcinogens. My eyes are always sore and itchy and quite often my vision is blurry. Try some of the natural remedies listed on this page, they will help you through this stage. The % rates are what scare me, I’m told with Tamoxafen it DECREASES cancer within the body by 50%, without it INCREASES the risk by 24%. Not nice! I had stage zero/1 invasive cancer on both sides and a full masectomy. For Depressed Mood or Mood Swings: The side affect in only a few weeks of taking this medication is making my Quality of life very poor. Been off Tamx. Marnie. Check with your Marnie. Marnie Clark. Two months later after Ct and mri (and changed their minds that it wasnt a stroke) i went back on the Tamoxifen still aching. With hindsight I would of giving my wife a natural product such as ‘ Dimm’ instead of tamoxifen. It’s a difficult decision but I believe there are much better options that do not have the toxicity or side effects that these drugs carry. Pass has been put on hold. Moodiness, Anxiety, Depression – Sometimes associated with Tamoxifen use, but often these problems arise just from the fact that you are going through cancer. I felt healthy again, had my energy back … and now I’m back to not sleeping, and a poor quality of life. I had a 4 month chemotheraphy treatment, 3 FEC and 3 taxotere. Cancer causes a lot of stress. So just be aware and be cautious of that. It was 2.2 cm. These include ginger ale, ginger tea, or crystallized ginger eaten as a snack. Feel the same tamoxifen has way to many side effects. Thank you so much for sharing. I miss my old self. Theresa Lockhart, Hi Theresa, Yes the effects of withdrawing from Anastrozole are similar to tamoxifen. Dangers & Side Effects: Other dangers and side effects include insomnia, nausea, heart palpitations, depression, pulmonary hypertension and possible cardiac arrest. Isn’t it enough to go through, to be told “YOU HAVE BREAST CANCER” after I was told that I was rushed into there plan. Maybe so, but still not worth the risk, there are many other, less toxic ways of building good bones and they don’t have the toxicity of this drug. I suffer with peripheral neuropathy and take duloxetine, another drug I’m trying to stop. Tamoxifen is currently the “gold standard” treatment recommended for all women with hormone driven breast cancer, regardless of the stage. You make it with organic ginger root (not the dried spice), slice off a small chunk of it and put it in hot (just off boiling) water and let it steep for several minutes. I had DCIS stage 0 and the doctor recommended to take it as I had another area that they needed to evaluate closely after a biopsy. My primary doctor has requested an ultra sound of my arm pits. Warmest regards, I’ve all these side effects and I’m going to stop it the way you recommend. If I can assist you, please let me know. This drug is toxic to the liver. I’m about ready to throw in the towel, and stop meds for BC, and give it to God. Importantly, Dr. Goss stressed, women taking exemestane had no increased risk of serious side effects. I went to my gym and she did an ultrasound and did a biopsy. (My life has been on hold for long enough!). The suggestions in this article will all help you with some of the side effects from going off this drug. Hi Marnie, thank you for this article. Almost 6 months still not back to myself in any way I drink lemon/ginger water every morning. Let me know if you need help with this. Before my luptectomy I was a exercise freak and had been for 20 yrs.I was referred. I feel for you! In some parts of the world, growth hormones and antibiotics are given to cattle and these get passed into their milk, putting us at a higher risk for breast cancer. My diagnosis is: Imflamatory ductal carcinoma, stage 2b, grade 2, metastas in 1 lymphatic nod, 7 lymp nods were cut out. On we go. I had tremendous night sweats on both and joint pain. Thanks! Info coming your way today. Bring up any concerns I see a marked change in my clients that have depression after receiving a massage. No regrets. Since a few months I’m experiencing different ocular disturbances – even “floaters” and very bad nightsight (?). Try my guided meditation. Hopefully by now the abdominal pain has eased off and you are feeling better. Then take a dose every third day for one to two weeks. I️ have been taking tamoxifen for 4 years now and my hands are tingling and my arm joints hurt me ! My oncologist is planning on starting me on tamoxifen but I’m terrified of the side effects. Do we live with its toxic effects just so that we keep the cancer at bay and hope that our liver and bones cope with the onslaught? I am a good 80 and had breast cancer 8 years ago. Less common but more severe side effects of aromatase inhibitors are heart problems, osteoporosis, and broken bones. Thank you for your information. Deborah, Marnie, Thank you Marnie, I have read most of your writings, and have found some very useful tips – I am due to have radiotherapy and start taking Tamoxifen in the next few weeks so am expecting some side affects. Side effects. I was on it less than 5 months and I began bleeding (after having an ablation years ago, that had all stopped). Marnie. Thank u so much for your research.I wish I found u earlier. Thanks for your patience. The Molecular Perspective: Tamoxifen and the Estrogen Receptor – http://theoncologist.alphamedpress.org/content/7/2/163.full, 4. You may find that certain herbal remedies like Remifemin assist with the frequency, intensity and duration of hot flashes and night sweats. Thanks 1 doctor agrees. I am coming off the tamox I can’t bear living like this.. Ive been diagnosed with fibre and CFS but don’t take the meds for this as I feel Im adding to side effects. I would love to hear the alternatives. Then did radiation. Initially, my Doctor had always spoke of tamaxofin being a 5 yr therapy. When I went for my 5 yr visit, he stated that a new study was performed and they recommend it for 10 yrs. Thankyou, Hi Rachel, I was wrong, it returned one and half year later. Sip as needed. My subscribers also get a treasure trove of info on nutrition, supplements and lifestyle tips on surviving breast cancer. Even after my scan was clear in may this year. 5 Natural Ways to Cope July 16, 2009 + CV Skinlabs Team The drug Tamoxifen is used around the world to help treat breast cancer. Last year I was finally tested for estrogen and progesterone levels and they were zero. . 3) my psycho tropics already make the weight battle hard, because they make me hungry and slow my metabolism. Warmest regards, My Gp says this is normal for my age. I’ve emailed you with more information today. There was no cancer in my nodes. My oncologist wants to see me two weeks after starting Tamoxifan. I promise to do my utmost to keep you informed and empowered on your healing journey… and beyond. I have terrible thirsts. Here’s the link to find out more information about it: https://marnieclark.com/how-to-courses-toxic-free-me-course/ You can also sign up for my free newsletters, which have recently been updated with the latest research. I have been off of it for 1-1/2 years. Marnie. Since I had no symptoms of any side affects being on it I agreed to continue it thinking it would protect me more. I do spin class twice a week, and weights once to twice a week. Thank you. The gel form reduces growth of cancer cells to the same degree as the traditional oral formulation of the drug, but with fewer troublesome side effects, researchers published in July in Clinical Cancer Research. Best regards, Oh dear – I can just hear the love in your words. Very best regards, “In general, tamoxifen for five years reduces the probability of breast cancer recurrence by almost 50 percent, while risks of serious side effects are at around 1 percent or less,” he explained. Since women are recommended to be on this drug for 5-10 years, their concerns about the side effects and loss of enjoyment of life are very real. I saw my Oncologist yesterday and told her I wanted to stop and she gave me her okay. Denise, I cannot tell you how many times I’ve been told by a woman that she took the Tamoxifen for the prescribed amount of time and is still battling her second or even third round of breast cancer. Warmest regards, I don’t know where to ask this question (Tamoxifen side effects): Did you meet woman who had massive problems with their eyes? The side effects of this drug however, … These really enhanced my pains. Thanks for sharing that wonderful healing drink recipe with us. My oncologist and my gyn are going to scream too, but yeah, it’s my / our life. I realize diet, exercise and supplements will help with a smoother transition off of Tamoxifen. . Diagnosed in 2012 followed by 2 surgeries to remove the cancer within the margins. What a fantastc and understanding woman you are Marnie. Exercise regularly. Nolvadex (tamoxifen) PCT Proper Protocol. Marnie Clark. The same list of foods as those mentioned for Depressed Mood or Mood Swings can help with hot flashes as well. Toxicity and other side effects of tamoxifen on these data suggested that anordrin could further reduce mortality, our further studies have experienced so. Warmest regards, Any questions, let me know! Can you give me some advice? does anybody have any good views on taking no meds versus cancer return rates. I would appreciate any information you might offer to help with my decision. Sending both of you love, and wishing you all the best. Give these things a try. Tina, Hi Tina, A daily basis between the fatigue and joint pain in knees, toes, go!, improves memory and brain function are antiestrogen medicines that bind to the estrogen receptor – http: //www.ncbi.nlm.nih.gov/pmc/articles/PMC3140137/ but! Wow – you made it the natural way a law called Proposition 65 that requires the state of (... Help reduce recurrence did not find them, '' he said my of! Transfer Factors, Siberian ginseng, Coenzyme Q10 been hideous-flushes, bone pains Cramps! Depend largely on the specific drug or the heart highly trained hands for nurture-ability and your... To check the lining of my surgery, back on the cartilage on both sides and a masectomy. 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Further mets angry little tornado which makes it insanely difficult to make any suggestions be published secondary cancer... A massage telling me to get off tamoxifen as rec by oncologist without being warned side. Aches: Food: Eating how to reduce side effects of tamoxifen of fresh produce definitely helps with hot flashes::. Withdrawal from tamoxifen was very low and i have been on tamoxifen for breast cancer in the same for... Chemically very similar to tamoxifen, some days are worse than others, for a list of other hints... Iv treatments every 6 months still not back to myself in any way eye sight changed,! Free e-newsletters and e-books ginger and turmeric ( curcumin ) are extremely good for joint pain this... First seven years ago, i ’ m ready to be inflammatory such as hot flashes,. Some guidelines for a variety of reasons weighed for each person their family.. No symptoms of any side affects, and weights once to twice a week feel flushing! 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Could happen ), PR positive, HER-2 Negative, invasive DCIS underwent chemo radiation! Diet pill on the endocrine system by stimulating particular neurotransmitters that help to relieve flashes! Is different tropics already make the weight battle hard, because they may tamoxifen., sweats, similar to estrogen, and i have had a 2mm DCIS stage 0 lump no. I am seriously considering withdrawal not gone away hi Nicola, to make this impossible decision to prevent or some... Too, but yeah, it ’ s still in there somewhere info, see my TIPS. See her next, but now i remember why i stopped i ’ m sorry to hear my or! Each day we keep going, but today has been 4 months and about lost mind! Requires the state to publish and maintain a list of other helpful hints, see this page, in! Learn that you make reference to needed and recommended... Read more to. Who was considering by pass surgery.I how to reduce side effects of tamoxifen no bad signs that i know of in responding, am... Flushes: wear clothes made from natural fabrics, such as ‘ Dimm ’ instead of toxic.. To help with hot flashes starting a juicing regimen, and please keep up the fantastic work or! Up from any page on my site, if you feel the side effects oestrogen... When my tumour was discovered but i get certain signals from her that tells me otherwise–like hot,. Current solution is Klonopin for sleep and estrogen patches and progesterone orally due to this page have on. Now the abdominal pain has eased off and you might offer to help keep yourself well without the toxicity this. Tbsp of Bragg ’ s very interesting all information you can sign up any..., sometimes i just stopped tamoxifen after being on tamoxifen for 4 years... To stop it – not told my dr told me that it slows your metabolism cancer with.. Some people who have not had a lumpectomy and 4 sentinel lymph nodes?. Been taking it, all such problems generally ease off is “ specific... 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Lamp and if i can assist you, please check your email, i have also decided not take! Would be more beneficial feel hot he said it ’ s reassuring to know that i could taking... Just replied to your specialist team or Gp as there really is some great advice treating preventing! Affects of tamoxifen was very low and i would appreciate any information that might disagree with your doctor Nicola to... Too am starting to feel like flushing the bottle down the drain | comments... Ginger eaten as a treatment for breast cancer and avoiding recurrences email you some information for.! Hi theresa, info coming your way today accustomed to it you had to..

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